lupusiana
female - 33 years, Pasig City, United Kingdom
Blog 4
Hi! I'm glad you drop by my site! Are you wondering who is behind this blog? Well, I am a 31 year old devoted mom. Yap, in the age where woman are encouraged to establish a career of their own, here I am, quitting my job to be a STAY AT HOME MOM & WIFE! Do not forget, I am also battling the rare autoimmune disease LUPUS! But, I am in REMISSION. Read on and join me in my journey as Edz - a WIFE, a MOM and a LUPIE in remission!
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It's Time for me to say "My Peace".
I want to share my thoughts as our country is in the middle of crisis again with the NBN-ZTE deal issue and the Edsa Revolution’s Anniversary is coming 2 days from now…
Like any of you, I too have been following the hearings, the news from both television and radio stations.
From then on, I really don’t like Gloria to be the leader of our country. I didn’t vote for her during the 2004 presidential elections. I am a Bicolana, a public school teacher and a supporter (member of RPYM- Roco for President Youth Movement) of former senator and Dep- Ed Secretary Raul S. Roco. He was my bet; he was the one I voted for because I believed that he was the most capable of all the candidates to lead our country.
In my house, school and church, I was taught that cheating, stealing, and lying is bad. Sa inyo, hindi ba ganun din? No leader of our already suffering country should be able to get away with that.
So I want the impeachment of Gloria to push through. Let Gloria stay hanggang matapos ang hearing at lumabas lahat ng taong involved sa gulong ito (the NBN- ZTE deal). Sa tingin ko hindi talaga natin kailangan ngayon ng another People Power. Tama, nakakasawa na pero nakakalungkot pa rin kapag may naririnig akong nagsasabi na “okey na ako ki Gloria, wala namang ibang papalit eh, pare-pareho lang naman.”
Para sa'yo Kaibigan…
Ikaw na nabubuhay sa araw araw na hindi nagnanakaw ng pera sa trabaho, na sinusubukang wag mandaya sa exam, at wag magsinungaling sa magulang o kaibigan… papayag ka lang na ang presidenteng nagpapatakbo ng bansa mo ganun? Ikaw na nagpapakahirap araw araw mag aral at magtrabaho ng marangal, tapos dahil lang may power at pera ang pangulo, kahit walang dangal, okey na yun sayo? Napaka walang bilib naman natin sa ating bansa. Nakakalungkot naman na ang ganitong klaseng pangulo na lang ang best option natin. Okey lang ba sayo yun?
Ibang- iba ang laban na to. The people who want the truth to come out aren’t upholding one person to replace her. Some say this is the downfall of the opposition. I think it’s the strength. It only means na hindi personality-driven ang panawagan ng mga tao. It’s ideal driven. The ideal na dapat ang corruption ang mawala sa gobyerno not only the corrupt!
Yes, it doesn’t just take the changing of a President to change the country. But it has to start! If people keep saying na lahat kailangan magbago, pero hindi naman nasisimulan, nothing will happen. The ousting of Gloria will not clean the system in one snap, definitely, but it will prove to everyone that change CAN happen.
It’s so frustrating when I heard somebody said, “okey lang mandaya at mangurakot sya.. lahat naman ng nakaupo sa gobyerno ganun ginagawa.”
Ganun?! Rizal, Bonifacio, Ninoy and all our other heroes must be crying in their graves. Sila nga, they fought for freedom of our country, hindi personal freedom lang, and they fought na buhay ang sinasangla nila. Tayo? We are “free people” and “what is right” na nga lang ang pinaglalaban natin di pa natin magawa?! Hindi na nga buhay ang on the line dito eh, konting discomfort na lang di pa natin magawa?
Prof. David once wrote an article “salute to the new” in a Philippine daily inquirer “(we) deserve a better president, and this generation knows it”. Tama sya.. Don’t you think we deserve to have a better leader? Don’t you think we deserve to be treated better?
We deserve a better Philippines, and this generation knows it.. more than that, this generation knows that we CAN do something about it. So, LET US DO something about it.
To all the Congressmen..
You are the “representatives” of your respective districts, dahil kayo po ang boses ng mga mamamayan sa gobyerno.
Kung lahat ng surveys ay nagsasabing napakalaking porsyento ng mga Pilipino ang wala ng tiwala sa pangulo at mayorya daw ng mga Pilipino ay naniniwalang nandaya, nagnakaw at nagsinungaling ang pangulo, hindi po ba dapat ang boses na yun ang naririnig natin sa Kongreso?
Madami ring reports ang nagsasabing kahit naniniwala ang taong guilty si Pangulong Gloria, pagod na silang mag rally. Kaya magtatrabaho na lang sila para makapaglagay ng pagkain sa tiyan nila at ng kanilang mga pamilya.. kahit gusto din nilang malaman ang katotohanan, iba ang kanilang kailangang piliing gawin para lang mabuhay.
Ayaw na nilang mag rally, ayaw na nilang makialam sa pulitika, dahil pakiramdam nila wala naman silang magagawa….
Which is where you, our supposed-to-be-honorable congressman come in. Pwede po ba? Fight for those who can’t fight for themselves..
To the witnesses and pro-impeachment movers…
I hope what people accuse you of, having selfish motives, isn’t true. I hope everyone just really honestly and sincerely want to make a big start in eliminating corruption.
To Madam Gloria Macapagal- Arroyo..
I say this with all due respect and kahit di nyo to mabasa, sana mahiya naman kayo..
When the supreme court said the e-vat is constitutional, you called on your people.. kahit hirap silang makakuha ng pagkain sa mesa nila araw-araw, kahit gula-gulanit ang damit ng mga anak nila, kahit napapabayaan silang may sakit dahil walang serbisyo medical na sapat, kahit halos kulang pa ang sahod nila sa pambayad ng pagkain, kuryente, tubig, pambili ng gas, kahit nagpapatayan na ang mga tao dahil sa pangangailangan sa pera.. you called on your people.. in your to SACRIFICE for the greater good of the country.
Tablan naman sana kayo ng hiya.. lead by example. MAUNA PO KAYO. Sacrifice. We respect that you don’t want to step down.. pero patunayan nyo muna pong hindi nyo kinukurakot ang pera ng bansa bago kayo humingi ng madaming buwis sa tao.
When your kids were growing up, and let’s say Mikey came home extremely late from a party. Didn’t you ever ask him, “Mikey! Anong oras ka na umuwi? San ka nanggaling?” Di ba gugustuhin mong magsabi sya ng totoo? Di ba masasaktan ka kung nagsisinungaling sya at pinagtakpan ng kanyang mga kaibigan? At hindi ba magagalit ka kung nung tinanong mo sya hindi ka nya sinagot at tinalikuran ka at nag lock ng pintuan ng kanyang kwarto?
Mahiya naman po kayo. Baliktarin nyo po ang sitwasyon ngayon. Hindi na po bilang pangulo kundi bilang isang ina. Parang napakasama nyo naman pong ehemplo sa mga bata kung ganun…
When it was former President Estrada who was accused of different crimes, you were strong in saying that a political crisis calls for a political solution. You even added that you “regret to say but resignation is the only solution”.
..mahiya naman po kayo.., dapat the same applies to you now. Dati resignation ang solusyon, ano pala ngayon? Cha-cha again? Niloloko mo ba kami?
Yes we should move on for our country’s progress, for our children and for our children’s children. But I think it should start with you as our leader. If the allegations are not true, how hard it is for you to just answer? Regain the trust of your people, so that we can ALL work together for a REAL TAKE – OFF.
Disclaimer: To those who were able to read this, I hope you do not take anything against me. Ayoko na sanang makialam sa gulo pero ako’y isa ring mamamayang Pilipino, nagtatrabaho bilang isang guro para sa gobyerno, na nahihirapan na sa sitwasyon ng ating bansang sadlak na sa dusa. I just believe that this generation is different. We’re strong, idealistic, real and free. We’re smart enough to know when something very wrong is happening right in front of us. More than ever, now is the perfect time to start making our country better. I hope you believe too….. -
My Misdiagnosis & Diagnosis
Before I was diagnosed with LUPUS, i experienced a roller coaster of emotions. Not only before but also after. LUPUS is not a well known disease. It is not popular. In fact, at the time I was suffering from it, people would ask me why I was like this, why I was like that and I would answer them because of LUPUS they would just stare at me and I know I would have to explain about it. Actually even now, while waiting with other patients for my rheuma or my cardio they would ask me, WHAT IS LUPUS? Although the difference now is that they would say ‘ YOU DON’T LOOK SICK AT ALL’.
Little did they know about my experiences before I met my rheuma.
Flashback to 2005. I was healthy. Then I got high fever, urinary track infection, loss of appetite, vomiting. Since I am stubborn I did not take any meds. Until my fever did not left me for about a week. My husband's family (in his absence because he is working away from us) and some of my co-teachers have told me to see a doctor. At first, I did not like to because for me my fever will go in no time. Since I am incurring a lot of absences, I went to see a doctor for the purpose of having a medical certificate (bad!).
At that time, the doctor gave me antibiotics, want a sample of my urine & blood which I have a difficulty of getting and started examining me for gout arthritis. After a week of drinking the meds and not getting well somebody told me to go to another doctor who according to her is a good doctor.
But because of my stubbornness again, I just stayed home with a very high fever. Imagine having a fever of 40'c? So my husband's family rushed me to the hospital. I remember being half conscious and half hallucinating at that time I was rushed.
I was confined in one of the hospitals in Naga City for about 15 days with different doctors- an OB, a nephro, a gastro, a hematologist, a general doctor, (whew!) Having these doctors still I was clueless of my ailment. I was diagnosed with rheumatoid athritis, fatty liver, urinary track infection & worst I was blood transfused because of severe anemia. Nobody from these doctors can tell what really my ailment is. One doctor said I have LEUKEMIA. Then my NEPHRO said its LUPUS-- she told me that maybe I have a LUPUS because according to her one of Lupus' symptoms is repeat UTI and the rashes which unfortunately appeared on my body and face (a butterfly rash).
Three days after I was blood transfused, the doctors decided to refer me here in Manila for further check ups. They refer me to a HEMATOLOGIST who after a few physical studies & few questions of what I'm feeling, refered me again to a RHEUMATOLOGIST.
I was put to a series of urine & blood tests. The test to really see if you are positive with LUPUS is the ANTI DS DNA test. I was like a guinea pig at that hospital and I felt really bad especially people stares at you as if you are out of this planet.
Then there was the result... my RHEUMA doctor read & explained to me that I really have LUPUS or SLE (Systemic Lupus Erythematusos). At first, I was clueless on what LUPUS is. Those people around me makes it worse, saying our former president died of LUPUS, my sister-in-law's friend died of LUPUS, all of those people who tell tales of LUPUS ends up DEAD. So, what do you expect me to do ? According to my doctor who is a well versed with lupus.. LUPUS is an incureable disease because it's an auto immune sysytem disease but it can be CONTROLLED.
I was given prednisone & a pain reliever. She explained to me well that prednisone has an effect to the bones so I have to take calcium as well. Thanks God that after having different doctors who are clueless of LUPUS, I found a very good and a very considerate doctor. As a fact, we are as if a very close friends.
At this moment while making this blog, my LUPUS is in control. What I am suffering from now is my Pulmonary Hypertension which I think a complication of lupus. I have to take an oxygen therapy at home. So I have two big tanks of oxygen to supply my 24 hour need of it... -
what's on my plate??
Lupus, lupus, lupus.....is that the reason my life is the way it is....
I have been diagnosed with Lupus for a year now. For about a year, I tried to live as normal as possible. I never thought of myself as sick or disabled. Funny, other people thought of me as sickly. Well, my last lupus attack was so severe with lots of complications. I finally admitted, I am disabled.
Life is great. If I can get up and fix breakfast and lunch for my husband (who goes to work) and my kids (who are going to school), it is a wonderful day. I try and enjoy every second of my time here. My family and friends are first. Also, I try to please myself and stay happy.
One of the most disturbing things that I have noticed before and after my Lupus was diagnosed was the crippling depression that accompanies it. It still is disturbing now.
Before, I would turn to alcohol to knock out the pain and fear that accompanied my symptoms. I used to feel that I was the only one; that nobody understood what I was dealing with. There are so many people with seemingly superficial problems - relationship issues, alcohol issues, self-esteem issues...the list will go onto eternity. While I still feel sorry for anyone with problems, I do try to help them. But I think, God, look what is on my plate.
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lupussianna's depression....
Why do i'm feeling this? is it because I am sick? I have this so called fucking LUPUS? anybody know what LUPUS is? Do you feel what I'm feeling right now? big deal so do a lot of people have chronic illness and they manage (or do they perhaps they do the same. is it lupus or depression? but the pain and the over all feeling ill are real. so is that what causes the depression or is the depression adding to the pain... I want to enjoy it. i dont want to be a downer to other people. some may say i am not a family person.. well, i'll let you feel this feeling for a while and see what you says then. why am i even writing this here.. airing my personal problem. because i can. because i need to vent. because i don't want my family now what i write and they never come here. maybe i need a hug from somebody, from people who understand. i wish i could talk to all of you face to face.
I am tired of being depressed and i think people around me, esp. my husband are tired of me being depressed. I take my meds and i don't need them increased, they're high enough. I need to feel better and get back to work...
